Shit. Have I seriously not
written since the Summer? How bad am I? Especially when I said I would try to
be more consistent.
There isn't a cat in hells
chance I can give you three months of updates, plus you'd be pretty fucking
bored by the times I got to the end of September!! So I'll give you some
'highlights' then add the pretty pictures at the end just because I really
can't be arsed to set it all out properly with it being the middle of the night
and all.
We are ten months into
living in our own home, my nephew Beau, is ten months old & walking! I
would say I proberly am the healthiest PHYSICALLY (I would never say mentally because
lets face facts I'm always going to be a total fuck up) I have been in the last
15 years of my life.
I had a recent trip to
Harefield & my consultant was over the moon at my progress since my last
visit. The TPN treatment that I started back in march seems to have done
wonders for my body, with me actually absorbing all the vitamins &
electrodes I so desperately craved. I have gained weight (which I am personally
finding hard to accept) & have also kept any chest bugs at bay. I was told
that I am looking incredibly healthy & not as fragile as I used to look
which is of course nice to hear... I do have my CF clinic in Exeter first thing
tomorrow morning so that's proberly why I am struggling with sleep tonight, I
am not concerned anything bad will be said, but you do get bogged down with it
all the constant blah.
I am back & forth to
Torbay stoma clinic at the moment for treatments because the skin has become
incredibly sore & broken down around Steve & I still have the ongoing
issues of severe dehydration & blockages but I am here, I am doing what I
can & the recent good reports suggest I should keep doing what I am doing!
So what have I been up to
lately? Still enjoying the zoo on my Thursdays, long as I haven't had a bad
night or the weather isn't completely shite... I have signed up to be an elf
again during the Grotto season & am looking forward to all the festivities
that go alongside ....
We have celebrated
birthdays, big and small. Meals out, cosy nights in & even a wedding thrown
into the mix.
Stefan surprised me with a
trip to Crocodiles of the World again but this time I got to feed the Nile
female crocodiles which was an awesome experience & one on my 'bucket' list
that I have created as I wanted to really make some memories & tick off
things that realistically I could do.
Stefan & I were
invited & attended a ball with some very dear friends & it was all in
aid of Harefield Hospital & the British Heart Foundation. It really gave us the chance to
get out of our comfort zone & dress to the nines for a good cause & it
was such a special evening, we won't soon forget. Stef himself has been doing
brilliantly on his fitness & bodybuilding, he even got the title of 'Member
of the Month' at his gym & is looking forward to more opportunities next
year.
I have had some really
nice trips out to the cinema with good friends, light lunches, & just quiet
time in front of the TV with my sister & a mug of tea & chocolate.
I am really excited for
the next few weeks & all the Christmas build up, Bristol & Bath Market,
Christmas parties, The Holly Ball, lunches & lights. Watching my squish
Beau enjoying it all for the first time is just insane & I don't think I
even mentioned that I am going to be an Auntie again to his sister Madison, due
in February! Very crazy times for everyone right now I imagine with 2019
drawing to a close...
One positive thing I can
say for not writing in so long is not because I don't have the energy, it's
because I am actually living. I take each day as it comes and yes I still get
those where I can't even get out of bed & function let alone step outside
the front door, but I have come on wonders in the last few months as have some
special relationships & I am extremely grateful for that. I will leave you
to those photo's now & update just before the big day to wish you all a
Happy Holiday....
Thank you as always for
reading, truly thankful xxx
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