I thought it was a good
time to update you with a few things that have been going on recently,
especially since I had my Harefield appointment & my new additions are well
& truly settled....
Clinic went ok, as well as
I could hope for as I came home again. I have come to terms with the fact that
my lung function is going to remain low, but long as I keep myself well,
stable. A lot of CF's can live with a lung function of 30% for a good few
years, I just need to stay as well as I can! If I become poorly I just know it
will plummet & that's when I will start to worry. I have a few issues going
on with muscle wastage & I am still having ongoing problems else where, but
things are being monitored. People have commented on how well I am looking so
that is of course, always a bonus & I had a lovely day catching up with
transplant friends old & new.
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| Keith & I |
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| Levi, Ten Week's Post Double Lung TX! |
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| Dave & I. Skull Souls :) |
I am next up in July, this
will be a very important clinic for me as it'll be coming up to my third
anniversary with these precious lungs.
What's funny is now, more
than ever I am truly beginning to appreciate the gift I have been given &
realise everything could all be taken away from me within an instant.
This has made me more determined
than ever to enjoy life. Everyday no matter what is thrown at me, and to finally
do things for me. Anything I wanted to do in the past present or future,
anything I have wanted to get... (within reason as I am not a materialistic
person whatsoever) Yesterday, for example, I got 4 piercing's done all at once.
I don't know what will happen in the future so its about the here and now. I am
chuffed to bits with them & plan to get more once these have healed... I
also have a two sittings booked for some very special ink after the Summer so
am currently saving my arse off for that & making sure everything is clean
& healing well.... Believe me, if it's anything like my medication &
treatments you will know I am looking after them religiously round the clock!!
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| Stefan & I A Few Weeks Ago At Woodlands |
I have a few things to
look forward too with regards to spending time with friends, up & coming
birthdays, including my husbands & my own, and then both my wedding &
transplant anniversary. I can see it being a very busy few months which will
hopefully be enjoyed rather than wanting to be forgotten.
An update on our nephew
Jack, sadly, has deteriorated very quickly & there is nothing that any
hospital can do for him, however, he is enjoying lots of fun days out &
spending time with people who love him very much... He always has a smile on
his face & for that he's my inspiration.
My best friends are going
through an extremely hard time at the moment so I am trying to be there for
them as much as possible. They, (as well as a few others) make me see how much
life is taken for granted and that you should grab it with both hands, I am trying
to do as much as I can with them, get some amazing memories under my belt &
in turn, hope that with my help things are a little less stressful for them
knowing I am here for them to turn too. I just wish I could take it all away
from them, but I want them to know I am always thinking of them...
Speaking of friendship, I
won't name them on here, but I also want to thank a very special, thoughtful
couple that really helped us in our hour of need. Words will never be enough...
Thank you from the bottom of my heart.
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| Kaos & Bo |
I'll leave you with some
nice piccies now, more of my beautiful, ever growing family. Cookie, now has
her little nephew sharing her tepee with her, Crumble is now 9 weeks old &
has settled in brilliantly (he really is Cookie's nephew!) I literally couldn't
love him more, if you are lucky and local! I am sure you will meet him on one
of our strolls into town... :)
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| Cookie & Crumble |
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| Crumble |
I have also welcomed into
my home Jinx my baby flat rock scorpion who only came home a few days ago, and
Maleficent, my huge salmon pink female tarantula has been with me just over a
month now. For someone who used to be petrified of even looking at a picture of
a spider, I think I am well & truly over my phobia now I own one of the
third largest in the world! She is truly stunning, and I consider myself very
lucky to be surrounded by all my amazing animals.
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| Jinx, My Baby Flat Rock |
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| Protecting My Lungs In Case She Flicks Any Hairs |
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| Maleficent |
I hope you enjoyed the
photos guys & I will write again soon...
Thank you for taking the
time to read as always xxxxx
