I have also booked a clinic appointment for Harefield for the week after so it's going to be more days of exhausting travelling but hey ho, needs must. I still have no idea when the operation is likely to be, I have been told there is a 6 week window from the date of your pre-op to have your procedure done else they'll have to get you in for another asssessment. As you know I am supposed to be a urgent case (although it hasn't felt like it) so who knows, I'll just have to take each & every day as it comes.
Health wise I have remained the same pretty much, I've started to get more productive with coughing & bringing up rubbish, bit sniffly too but it's not worrying me particularly. My weight is up & down like a yo-yo which is quite confusing, I have no idea if it's my scales or the high dose pred but I'm just getting on with things until I know this dam op is out of the way. I had a osteoporosis appointment on Monday, my bones are extremely thin now & I need to have another infusion but as the fundo op is more important I have to wait until after this is done, until then I have been told not to slip in the rain or even go out when its icey because if I fall I could break my hip.... Hmmmm, fun times! I have had quiet days at home & a few days here & there seeing my closest friends which has been really nice, some of which I didn't see over the entire summer holidays what with my heart scare & other things, so was really nice for catch up's & to see how fast their little ones have grown. We don't do anything too strenuous but it still seems to exhaust me come the late afternoon.
My Gorgeous Nephew Jack &
His Mummy Kelly Visiting Me Yesterday
Afternoon
Little Munchkin Leo, Grown Up
So Quickly Over The Summer!
Chase Pushing Me In The Park
Changed So Much Over The Summer
Holidays :)
As you know, I have wanted to do something for charity for ages, I am not the sporty type whatsoever, & I certainly can't even think about running a marathon or cycling to Newquay right now. Ideally I would love to be abe to do something with my snake babies but because of health & safety laws / insurances etc it just isn't possible. I have been racking my little sweetcorn kernal of a brain for weeks & came up with a little idea to try... I am a massive kid at heart & love Halloween & Christmas. I thought about creating a 'kit' with a few items in for primary school aged children, to enjoy the Halloween festivies. Thing's like bunting, a trick or treat bag for their sweeties & an alternative pumpkin... I put the idea out there on facebook & had quite a bit of positive feedback from friends who said they would buy them for their little monsters, this made me all the more determined & very excited about endless possibilites.
So now I am in the middle of creating these packs, from now until the week before Halloween which is keeping me busy. I am however, only making a limited number for the moment. I will be selling them on a first come, first serve basis as some of the stuff I have already sourced has restricted me with numbers & as I am paying for all the materials / items out of my own pocket (which is as shallow as it comes!) I want them to do well & sell quickly first so it isn't a waste. The proceeds from selling my bags will go directly to EDCF - Quality Of Life Fund who has helped me so much over the last few years. I just really wanted to say thank you & give something back you know???
I am meeting my lovely Nicki who made my wedding dress on Monday to talk business, she is very kindly helping me out with her seamstress skills.... My friend Hayley is helping with socks, one of my nurses from back when I was knee high to a grass hopper on Lousia Cary Ward is doing something creative with balls! And the rest well, I really hope to make these packs quite special.... I will be taking pictures a long the way & let you know when they are up for sale with the contents listed & everyone who has helped out with them. (Thank you so much to the ladies above) As I said, there will be limited numbers but I'll keep you posted with my progress, IF they do well, I hope to make some Christmas ones & make even more .....
My First Ever Attempt At A Sock Owl!
With Hayley (his wings are fucked, his beaks
too low & his eyes were glued on coz I ran out
of thread but not bad since I haven't used a
needle & thread since I was 14?!)
So that's about it for now, until my road trip with Hayley on Thursday (which should be interesting hey love!) I think my time will be filled up with nebs / meds & all things Halloween. Maybe fitting a few special people in here & there if I can, but the bugs have already started flying about & it's not even October! I love the winter but I hate the fact people catch so many lurgies, makes being immueno suppressed quite lonely at times, but then again, I wouldn't have it any other way - If it wasn't for my hero I wouldn't be here writing this to you today!
Hope you all have a great weekend, ta for now...
Snake Pic! My Big Boy Thunder Stretched Out & In Deep Shed
Gorgeous xxx
Thank you as always for taking the time to read. xxx
