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Saturday, 21 May 2016

Life Is Precious, Treat It So



This isn't going to be a very nice blog, but I won't drag it out either. The world seems to like to test us in many ways & it's been one hell of a week for heart strings as I have just woke from another sleepless night to find out that another dearest friend has lost their fight not even a year post their double lung transplant.

My gorgeous friend Sarah, who had the most zany zest for life passed last week after many infections beyond her control. I last saw her & her lovely husband at my latest Harefield clinic. It was her 50th Birthday & she looked like she had slept with a coat hanger in her mouth as Dr Carby was letting her go home early so she could celebrate the day with her beloved, her smile was so big, she was so happy, I'll never forget that huge squeeze she gave me walking out the door. It was unexpected so I am still finding it hard to come to terms with the news that she is actually gone, my heart goes out to her husband, family & friends in North Devon.

Sweetdreams Sarah xxx


For the last couple of months it's been very difficult watching a close friend & her family coming to terms with losing her dad. After a horrendous short battle with a very aggressive motor neurone disease, George passed quietly last week at home surrounded by his family when there was nothing left the hospital could do for him. My friend has been in absolute bits & it's been very difficult to know what to say or do, you feel incredibly helpless, but hope that they know, I am here if or when they need, 24 / 7.
There is a collection in memory for my friends father, for the motor neurone disease society so if you have a few spare pennies this month & it is close to your heart, your donation would be greatly appreciated....


My friend, Andrew is going through absolute turmoil battling with his last stages of cystic fibrosis on & off the active transplant list at the moment. He's constantly being admitted & put on hold for his new lungs because he just becomes to poorly to be able to accept the huge operation. He has also had five calls to date & none of which have been a match. I really do feel for you & Helen my sweet, I hope that you get stronger every day & get those new shiny lungs you have been fighting so hard for...

& then it brings me to right now, receiving a message in the early hours that my little friend Hayley, after barely six whole months with her new lungs lost her massive battle with constant complications due to her transplant. This girl was incredible, she was pint size but packed a punch (reminded me a lot of myself) & had the most beautiful smile. I bonded with her instantly when we started travelling together to the clinics & back & her dad was a hoot. She thoroughly enjoyed meeting Crumble my skunk & couldn't wait to pop round & see the rest of the zoo. Sadly, it is not meant to be, and after losing their second daughter to cystic fibrosis I am absolutely heartbroken for Hayleys family. I hope you can rest now sweetheart, you & your sister have each other now. 

Sweetdreams Hayley xxx


I guess all I can say here is, forgive, forget, laugh as much as your body will let you & tell those ones around you that you love them. You will never know what is around the corner in this drama we call life, but please don't take it for granted, not one second as you will never know when you just might regret it.

Take care, have a peaceful Sunday & thank you for reading as always.



xxxxx 











Sunday, 8 May 2016

A Monday Morning In May....



Another night without sleep, another opportunity to update you guys on what's been going on here over the last few weeks...

Arthur, New Cuvier's Dwarf Caiman @ Exeter Exotics


My lungs have remained stable, and other than regular blood tests I have remained out of hospital. I have tried to sleep as I do normally like Martin suggested, (as sleep is more important) but since doing so, my acid reflux & the choking on my food particularly has got severely worse again. It's been every day that I have brought something up, if not once, a couple of times & it's really starting to get to me now. We went out for a date night earlier, a rare occasion & I was a little worried. I didn't even think about it until I had almost finished my starter & I started to feel the pain. Straight to the toilets I went & remained until my oesophagus was clear. Thankfully, I took about two hours but managed to keep my main down with the tiniest of forkfuls into my mouth!!

I have CF clinic / annual review this Wednesday (after another dentistry appointment, my last thankfully!) so I will be discussing any thing they could possibly do to help with this from the team, as well as seeing everyone from Peppa Pig to Joe Bloggs in-between.

One thing I wanted to tell you all, is that I have just signed up for giving up my body for medical science when I eventually pass over. I am not trying to be morbid, but having the condition that I do, & living the life in & out each day, seeing people pass in hospitals, friends on waiting lists die needlessly because there just aren't enough donors, I wanted to give something back with my life just as my donor did with his. 

I am obviously on donor register & always have been, but if none of my organs are suitable, I still wanted the chance to be able to help in some way. So, without hesitation I contacted the University of Bristol (which is the closest to us for people wanting to know) & am now on their list to have my body donated to medical science. Thus, when the time comes, I won't be having a funeral as such, as there won't be a body. But I will have what I hope to be a celebration of life service. Sounds a bit odd maybe, but I feel really positive in that in the event of my death, I could still possibly help a lot of people.  

Now onto the more fun, less death type stuff.... 

Stef & I went to Bmad as promised last weekend & it was a lovely afternoon out. We got a nice shot on the bike together coming into the festival & saw some really friendly faces so it was an awesome day & I am glad I was well enough for it. I even thought FUCK IT! & on the way back from one of our rides & had him take a picture of me on his bike with my TAT out! HaHaHa.... 




It's been exciting at my zoo, as my first royal of the season has dropped her eggs & had a healthy clutch of nine pearly whites! So now, they are cooking in the incubator & I have to sit & wait for a good 60 odd days til they emerge....
Maleficent shed her skin, she is almost the size of Kaos' head now!! This is just the moult, not the actual spider he has having a sniff of!

Kaos & Maleifcent's Moult




& I got a few more piercing's to keep my pain toleration to a high level! 



It's one of my brother's birthdays today so a special shout out to him who's turned 27, have a good day Benjaminge!
& I also want to mention a few names of people going through a real whirlwind of shit that is just so completely unfair. I am thinking of you all, you & your families & hope that whatever happens you are surrounded by lots of love. Andrew Ward, Kim Moult, Gemma Fearing, Kayleigh Rebecca, Sarah Fry & Katy Bruce, if I've missed anyone, I am sorry, but you are in my thoughts also!.

That's about it for now, will leave you with a few pics as usual & wish you all a good Monday, let's see what this week brings....


Bodacia - Baby Vamp

Cookie & Crumble Bugging Me In The Bath

Mother & Son Sunday Cuddles


Take care yall & thank you for reading as always - Over & Out xxx


Bye For Now !!